Thank you for visiting the NW Pediatric Pulmonary Hypertension Support Group. Our goal is to provide education and support to families of young children diagnosed with this progressive disease, connect our PH'ers with their peers and provide education and awareness to our community.
As a parent of a young 3 year old who was recently diagnosed, I know all too well the immediate feelings of fear and worry about my child's future. Thankfully I found my way to the PHassociation website where there is a wealth of information regarding new treatments, support groups, education, awareness and advocacy.
The reality is that our children have a long medical journey and that we ourselves have a long emotional and financial journey. This is a road that none of us will walk alone.